Young Carers in a Changing World
Turning Experience into Action: Young Carers as Changemakers I
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Young Carers Voices changing the world of policy and development. A global network Call to Action: ‘Recognise Young Carers and understand our Needs’
Helen Leadbitter
Young Carers Initiative
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United Kingdom
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About this presentation
Commonwealth Organisation for Social Work co-ordinated a global consultation with young carers in countries across the global north and south to develop a Charter for Young Carers. This outlines ten core recommendations and a call to action for local and national Governments globally to recognise young carers and understand their needs in relation to those they care for.
Key takeaway
Learn from our experiences of co-creating advocacy actions with young carers, through informing young carers of their Rights as children, as outlined in the articles of the UNCRC, and enabling young carers themselves to inform us about where these rights are not upheld due to the impacts of caring responsibilities during childhood and young adulthood. With an outcome of developing an international charter for young carers to galvanise recognition and support for young carers globally. Hear how the Charter was presented at the Commonwealth Heads of Government meeting in Samoa in 2024, at meetings of the Commonwealth Health and Youth Ministers and was recommended in communiqués raising the profile of young carers voices on this global platform.
About the presenter
Helen Leadbitter is a Social Worker who has been working in development and campaigning for young carers in the charity sector for over 25 years, has recognised specialist knowledge of young carers and the growing young carers sector both nationally across England and internationally; provides consultancy work and is a research fellow of the Open University Carers Research Group.
https://www.linkedin.com/in/helen-leadbitter-mbe-49217312a/
Young Adult Carers Connect: From Isolation to Community
Josephine Conrad
wir pflegen e.V.
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Germany
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About this presentation
This presentation explores what happens when young adult carers move from silent isolation to mutual support. Drawing on the lived experience of balancing young adulthood and caregiving, it shows how a digital self-help group restores agency and why recognising young adult carers as individuals beyond their caregiving roles is essential for wellbeing and meaningful connection.
Key takeaway
Discover how Young Adult Carers Connect transformed personal isolation into collective strength through a digital self-help group. Participants will explore how lived experience, peer support, and creating spaces of belonging can empower young adult carers and reshape the way their needs are understood.
About the presenter
Josephine Conrad co-founded Young Adult Carers Connect, a digital self-help group for young adult carers in Germany. After supporting her terminally ill mother as a teenager and caring for her father following a stroke during university, she co-created the group.
www.linkedin.com/in/josephineconrad
Taking Care of Ourselves
Shannika Greene, Saoirse Hayden, Kellie McDonnell, Miki Greene, Claire Perrie, Anthony Ojoi
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Ireland
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About this presentation
How young carers in Ireland advocated for their rights on a local, national and international stage.
A presentation by 6 Irish young carers covering our advocacy journey.
– presenting to government as young carers.
– award winning youth service.
– project Nexus and EuropeanSolidarityCorps connecting carers
– participatory research
– the National Young Carers Conference and meeting the President.
– The UN invitation.
– The Art of Caring
– Reporting to the Decision Makers.
– Here we are. To infinity and beyond
Key takeaway
Taking Care of Ourselves – How young carers in Ireland advocated for their rights on a local,national and international stage.
About the presenter
Shannika Greene- My name is Shannika Greene I am 20 year old, I am currently in the Technological University of the Shannon in Ireland, I am studying am currently in a studying a Level 8 Bachelor Honours Degree in Social Care Practice. Shannika is now CAIM Empowers Irish Programme Manager.
Saoirse Hayden- Hi my name is Saoirse I’m 19 years old and I’m in my final year of my bachelors degree in History and Sociology, I was the co lead alongside Shannika for the National Young Carers Conference in Dublin.
Kellie McDonnell- Hi, my name is Kellie. I am currently studying at Level 8 for a Bachelor’s Honours Degree in Social Care Practice.
Claire Perrie- My name is claire Perrie-Connor and I’m 18 year old foster care leaver and transgender young person. I’m also a spokesperson for the rights of LGBT youth alongside young carers and a strong participant in social change initiatives
Miki Greene- My name is Miki I am 18 years old, I am a young advocate and project contributor with a strong interest in ensuring young people’s voices are heard and valued. Through my involvement in youth-led projects, I have contributed to discussions around young carers, inclusion and young people’s rights.
Anthony Ojoi- Hi, my name is Tony. I’m currently studying Culinary Arts and I’m also a clothing brand owner, where I’m involved in designing and developing my own streetwear brand. I’m passionate about creativity, business and developing new skills.
Recognition
Missed Opportunities for Change – A Holistic Approach to Supporting Young Carers
Sarah Jones
Access Sport, United Kingdom
UK
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Using a real case study, Sarah will share an in-depth exploration of a series of missed opportunities to identify and support a young carer within a family setting in the UK. Attendees will engage in discussions on the need for holistic, multi-service approaches and the impact of when opportunities to support families and young carers are historically missed.
The Multifaceted Impact of Young Caring in Education, Relationships, Mental Health and Long-Term Health. Longitudinal evidence from the UK.
Rebecca Lacey; Anne McMunn; Alison Nicoll; Alejandra Letelier
City St George’s University of London; University College London; Anglia Ruskin University
United Kingdom
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This symposium brings together four longitudinal studies exploring how being a young carer can affect education, friendships, mental health and health later in life. Using large UK longitudinal studies and linked data, we will share new evidence on the challenges young carers face and discuss what this means for policy and practice.
Rebecca Lacey is a social epidemiologist at City St George’s, University of London. Her research focuses on young carers, examining how caring responsibilities in childhood shape mental health, education and health inequalities across the life course.
Anne McMunn is Professor of Social Epidemiology at University College London. Her research explores how social circumstances across the life course influence health and wellbeing, with expertise in ageing, caring, work, family life and social inequalities.
Alison Nicol is a Research Fellow at City St George’s, University of London. Her work focuses on social inequalities, longitudinal data analysis, and the health, education and wellbeing of children and young people, including young carers.
Alejandra Letelier is a Senior Lecturer at Anglia Ruskin University. Her research examines health inequalities across the life course. She specialises in longitudinal data analysis, social determinants of health, and using research to inform policy and practice.
Find out what new longitudinal UK evidence tells us about the experiences and life opportunities of young carers. We hope the session will spark discussion about how schools, health services and policymakers can work together to better identify and support young carers.
Why a Young Caregivers Roundtable? Networking Canada’s Support, Research and Advocacy Efforts
Oliver Fitzpatrick, Grace Smith, Cayleigh Sexton, Rhiannon Satherley, Rosie Paulyk, Rebekah Gold
Canadian Centre for Caregiving Excellence, Young Caregivers Association, BC Children’s and Women’s Hospital and Health Centre, Young Caregivers Collective of Canada
Canada
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This Symposium brings together members of Canada’s Young Caregivers Roundtable, an interdisciplinary network of advocates, young caregivers, researchers, service providers, and caregiving sector partners. Presentations will explore a national young caregiver framework, sibling caregiving, employment, mental health, and young caregiver leadership, highlighting how shared knowledge and collaboration can strengthen supports across a nation.
Oliver Fitzpatrick is a community organizer with 10 years’ experience in nonprofit coalition-building and project management, including establishing and leading programs for young carers. He is Partnerships and Knowledge Translation Specialist at the Canadian Centre for Caregiving Excellence.
Grace Smith, PhD, is Senior Operations Specialist at the Canadian Centre for Caregiving Excellence, where she leads the Young Carers Roundtable. With experience in community, health, and arts settings, she is passionate about creating better systems for caregivers, care providers, and care recipients.
Cayleigh Sexton is the Executive Director of Young Caregivers Association and a leader in advancing support for young caregivers. With over a decade of experience spanning practice, research, and organizational leadership, she works to build programs, partnerships, and systems that respond to the unique needs of young caregivers while strengthening their recognition and support across Canada.
Rhiannon Satherley is the Manager of the Sibling Support Centre and Services at BC Children’s Hospital. Drawing on professional and lived experience, she leads initiatives that advance recognition, support, and national collaboration for young sibling caregivers.
Rosie Paulyk started caring for her mom who lives with MS at age 10. In young adulthood, she has worked with CBC and River Road Films, created The Multiply Music Effect, and grown Chronic Oasis, an online community for chronic caregivers.
Rebekah Gold is a PhD Candidate at Brock University researching care, mental health, and participatory arts-based approaches with young carers. A lived-experience researcher, she co-founded and leads the Young Caregivers Collective of Canada.
Explore how Canada is breaking down silos to support young caregivers from pediatrics through young adulthood. Bringing together practice, advocacy, storytelling, and lived experience, attendees will learn practical strategies and collaborative models from organizations, young caregivers, and researchers across Canada.
Recognition
Recognise, Refer and Reach: a partnership approach to supporting young carers in resource poor settings
Ruth Patil
Carers Worldwide
United Kingdom
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The workshop will focus on how a holistic approach to young carer support can be adapted for a range of resource poor settings in order to meet the needs and aspirations of young carers as well as encourage systems change. Participants will have the opportunity to reflect on their own work with young carers and the context within which it operates, and learn from the experiences of those working in a range of settings globally. Young carer voices will be central within the workshop, as will an emphasis on the need to establish meaningful partnerships between stakeholders in order to achieve sustainable change.
Ruth is the Development Director of Carers Worldwide, an international charity which promotes recognition and support of family carers in the global South. She has over 30 years’ experience in the health, disability and international development sectors in the UK, South Asia and East Africa.
Learn about a holistic, partnership-led approach to young carer support and reflect on your own partnerships and practice.
Nothing about us without us: Meaningful Involvement of Young Adult Carers in Policy and Practice
Robin Kirknes Andreassen, Oda-Marie Muriaas, Karoline Robertsen, Elizabeth Ledal, Stian Kofoed Henriksen
Pårørendealliansen Ung
Norway
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This workshop explores how young adult carers can become active contributors to policy development. Members of Pårørendealliansen Ung will share experiences from a national youth-led advocacy council. Through group discussions, participants will exchange approaches and identify practical strategies for creating sustainable and meaningful participation across different national contexts.
The workshop will be presented by members of Pårørendealliansen Ung, a national youth council bringing together young adult carers with diverse caring experiences. The council works to raise awareness and influence policies and services affecting young carers in Norway.
Gain practical insights into how organisations and others can move beyond consultation and create meaningful, youth-led participation.
